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WFH 2012 World Congress

 

8-12 July, 2012 Paris, FRANCE
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Discussion forum - WFH 2012 World Congress
    Topic - Mild Hemophilia

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Poster: 120
Visits: 551
Title: Caring for Mild Hemophilia: A Challenge to Comprehensive Hemophilia TreatmentCenters
Authors: M Dawn Goodyear , A.M. Lauf, D. Jenkins, J. McDonald, M-C Poon
Centre: University of Calgary

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CARING FOR MILD HEMOPHILIA: A CHALLENGE TO COMPREHENSIVE HEMOPHILIA TREATMENTCENTERS

M Dawn Goodyear
Thread initiator
Subspeciality
Reg: 6/23/2012 5:05:00 PM
Comment# 1
Patients with mild hemophilia face a distinct set of challenges, including inability to recognize bleeding symptoms, questions surrounding the response to and appropriate use of desmopressin for bleeding episodes as well inhibitor development and treatment. In comparison to severe hemophilia, the course of the disease is less dramatic in mild hemophilia and the life expectancy is very close to that of the normal population. However, hemophiliac caregivers have anecdotally observed that patients with mild hemophilia appear to have a tendency to avoid a consistent relationship with comprehensive care clinics. A discussion of your experiences caring for individuals with mild Hemophilia A would be appreciated.

Comment added on 6/23/2012 5:05:00 PM 
     
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Most viewed poster for this congress
Poster: 243
Visits: 2712
Title: Use of the Exergaming (Nintendo Wii) in the Rehabilitation of Patients withHemophilia.
Authors: JANAINA BOSSO JOSÉ DA SILVA , Rafael Fagnani, Egritti de Oliveira Zacarias da Silva,Marcia Aparecida Picoloto Matta, Margareth Castro Ozelo
Centre: UNICAMP

Poster most viewed in this topic
Poster: 121
Visits: 832
Title: Development and Evaluation of a Self-assessment Pathway for Young Men with Mild Hemophilia
Authors: JoAnn Nilson , Kathy MulderKristy WittmeierCandice Schachter
Centre: Canadian Physiotherapists in Hemophilia Care


 
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